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When you're significantly disabled, and your country doesn't give a single shit.
Today is one week post-op. I was on the table exactly seven days ago right now. Today, I also was notified by US SSI Disability that my request to review my hearing from April 2025 has been denied. Which means I'm starting the application process over from scratch, for the third time in six years. Why was I denied last year? Because the "employment expert" at the hearing decided I could still be a receptionist, even though I have literally failed at being a receptionist becau
6 days ago2 min read


But why are you falling apart so hard at 43, Auntie?
I'm getting asked this a lot lately, so here's the deal. And TW on pretty much every physical and mental health topic out there. tl;Dr, my genetics are such a bitch (comment where that's from if you know it!) And MeeMaw is Neurodiversity. My first flare happened in 2001, when I was 19 years old. It took me out of dancing and into reiki. And it involved my old hip... my left hip subluxed, and caused a severe muscle spasm in my piriformis muscle to hold it out of place (and sho
Jan 85 min read


Yet another specialist on my care team!
I probably should have made this appointment when I didn’t notice the ingrown toenail until I ripped it out and it started bleeding everywhere this past summer. No pain, or sensation whatsoever at any point during all of this. A couple of days ago now, I learned as I was grooming my toenails that I have no feeling in my toes anymore, to the point where I sliced the nailbeds of 4/5 nails open with the nail file. So, now I see my new podiatrist on February 2nd to talk about fut
Dec 19, 20251 min read


When God says “twerking’s just not for you, babe.”
One thing about being a middle eastern dancer in the 90's is that the Algerian pop music scene was happening, and I was there for it way more than a teen girl from Michigan should have been. I discovered I was hypermobile when I started an Arabic dance class at 16 years old. I could bend in ways no one else could… and also just could never develop the muscles in certain places to do certain things. While this led to frequent muscle spasms in my lower back starting at 19 years
Dec 6, 20252 min read
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