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When you're significantly disabled, and your country doesn't give a single shit.
Today is one week post-op. I was on the table exactly seven days ago right now. Today, I also was notified by US SSI Disability that my request to review my hearing from April 2025 has been denied. Which means I'm starting the application process over from scratch, for the third time in six years. Why was I denied last year? Because the "employment expert" at the hearing decided I could still be a receptionist, even though I have literally failed at being a receptionist becau
6 days ago2 min read


But why are you falling apart so hard at 43, Auntie?
I'm getting asked this a lot lately, so here's the deal. And TW on pretty much every physical and mental health topic out there. tl;Dr, my genetics are such a bitch (comment where that's from if you know it!) And MeeMaw is Neurodiversity. My first flare happened in 2001, when I was 19 years old. It took me out of dancing and into reiki. And it involved my old hip... my left hip subluxed, and caused a severe muscle spasm in my piriformis muscle to hold it out of place (and sho
Jan 85 min read


I also did not expect this bonus meal-planning post.
So... I've had the panic pukes all this past week, which means I'm eating very blandly and sparingly, and the extra brown rice I made for the meatloaf didn't get eaten. And since the family dinner tonight was very allergy-unfriendly, I decided to turn it into Sardine & Brown Rice Croquettes and freeze whatever I don't have for dinner tonight. If I have two per serving, I have seven meals worth in the freezer. I didn't talk myself out of the binder this time! And it adds plan
Jan 32 min read


Yet another specialist on my care team!
I probably should have made this appointment when I didn’t notice the ingrown toenail until I ripped it out and it started bleeding everywhere this past summer. No pain, or sensation whatsoever at any point during all of this. A couple of days ago now, I learned as I was grooming my toenails that I have no feeling in my toes anymore, to the point where I sliced the nailbeds of 4/5 nails open with the nail file. So, now I see my new podiatrist on February 2nd to talk about fut
Dec 19, 20251 min read


I forgot about this part 😞😞
I’m watching the Joint Replacement Class video… no Meloxicam for 7 days before surgery. That was bad enough before spine surgery, without Meloxicam right now, I’m at a constant 8.5 pain level with my hip. Deep breaths, deep breaths… Also, no pets in bed with you the night before surgery. Again, someone needs to inform Penelope of this, she’s not going to take it very well…
Dec 8, 20251 min read


The Nerves.
Just girly things. So, how do you pre-surgery panic? I am well medicated against panic attacks, they have to be really, really bad to break through the med barrier and manifest as a full-on attack. I was expecting this recent major medical malady, so I haven't gone into full panic mode yet... but the nausea and vomiting has started. Especially at night. Now, the first thing I was taught at Fibromyalgia Clinic is that the first rule of Fibro Club is that we do not talk about F
Dec 7, 20251 min read
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